Over recent months, I have been working with my constituent Joanna Stephenson, on behalf of families across West Sussex, to raise awareness of selective mutism and to push for improved support for children affected by the condition.
Selective mutism is a recognised anxiety disorder which affects a child’s ability to speak in certain settings, despite being able to communicate comfortably in others. For many children and families, it can have a significant impact on education, confidence, wellbeing, and day-to-day life.
Joanna first contacted me to share her family’s experience and the challenges many parents face when trying to access support. Since then, she has built a growing campaign, launched a petition which has attracted more than 1,600 signatures, and created a support network bringing together families from across the county.
Since hearing from Joanna, my team and I have been raising these concerns with both West Sussex County Council and local NHS services. We have sought answers about what support is currently available, how families access it, and whether children are receiving the help they need.
Earlier this week, I took these concerns directly to the House of Commons, raising the issue with the Minister for School Standards during Education Questions. I asked what more could be done to support children with selective mutism and their families.
I was delighted when the Minister agreed to meet with me to discuss the issue further.
I have since written to the Minister with further details of Joanna’s campaign, the experiences that have been shared with me by local families, and the concerns that have been raised about awareness, training, and access to support. I have also asked whether Joanna can join the meeting so that the Minister can hear directly from someone who has first-hand experience of navigating the current system and campaigning on behalf of other families.
I want to pay tribute to Joanna for everything she has done. Her determination and commitment have helped bring attention to an issue that too often goes unnoticed, despite the impact it can have on children’s lives.
Every child deserves the opportunity to thrive at school and fulfil their potential. I look forward to continuing to work with Joanna, local families, schools, NHS services, West Sussex County Council, and Ministers to ensure children with selective mutism receive the support they need.
I will continue to keep residents updated as this work progresses.
